As a healthcare consumer, marketer and advocate, I went to SXSW Interactive (SXSWi) looking for the holes in my communication on all fronts. Beyond wearables and technology on the horizon, I was eager to learn what best practices I could put into place immediately.
Optimize. Convert. Metrics. I heard these over and over. And while they are great reminders of the transaction involved with any brand, I was looking for more.
Back at the office, a majority of my day is spent developing messaging. I am a communicator. It is essential that I understand both the brand and consumer. After all, my goal is to bring these two together to develop a relationship built on trust and service.
If you have not been to SXSWi before, each day is full of a variety of panels available to all with an Interactive badge. You can only gather so much about each panel from the event description and speaker bios. Some a drawn to a panel by the topics, while others are eager to hear specifically from one person.
A panel titled “Finding a Breast Cancer Cure: What Needs to Change” sparked my interest. Having a family member recently diagnosed with breast cancer and going through screenings myself, I did what not many at SXSWi have done before – attended a session after 5PM.
To my delight, a majority of the?conversation was focused on semantics. Whether you are crafting a?Facebook Ad or outdoor billboard, how we speak to (and about) patients and caregivers is critical. Using the correct terminology not only means that you are steering clear of offending the masses, but more importantly, it means you are listening.
Before I share the thoughts captured throughout the panel, take a look at the questions below. Quiz yourself. What is your gut response?
-
Do patients thrive on “battle language”? Ex: Survivor, Won/Lost, Battle
-
Is Stage 4 part on the overall oncology discussion?
-
Should funding still focus on awareness?
-
Is it time to tell the not-so-glamorous Stage 4 story?
-
Is their one voice for the breast cancer community?
-
Is it cure or cures?
-
Do patients feel empowered enough to speak up about their treatment?
-
What is social media’s role in empowering patients?
-
Is the right data available?
-
Are clinical trials only a last resort option?
Now take a look at the conversation highlights:
From the room: “I don’t like the battle language used in breast cancer” – I’m not a survivor, I will die of this disease #BCCure
— Healthline.com (@Healthline) March 15, 2015
From the audience: stage 4 patients often excluded bc “out of remission/treatment” requirement from orgs, exercise groups,etc. #BCCURE
— Megan E. Ortiz (@meganeliseortiz) March 15, 2015
@Healthline Metastatic should be part of convo from time of diagnosis. I’d rather know the truth/full picture from beginning. #bccure
— TeamRoxy (@TeamR0XY) March 15, 2015
Awareness is over. Educate Act Support Research #bccure $sxsw
— Ginny Finn (@ABCDginny) March 15, 2015
#BreastCancer has achieved awareness, it’s time to spend funding on a cure, according to @ButDocIHatePink #BCCURE #SXSWi
— Healthline Corporate (@HealthlineCorp) March 15, 2015
Ppl want feel-good pink stories. How do we get the public to see the other side. #bccure
— Beth L. Gainer (@Bethlgainer) March 15, 2015
@LivingBeyondBC @Bethlgainer At first, hearing metastatic stories scared me. Now that I’m better educated, they inspire me. #bccure
— TeamRoxy (@TeamR0XY) March 15, 2015
There isn’t really one voice to the #breastcancer community. It’s a challenge #bccure #sxsw #maksxsw
— Laney (@lanes0220) March 15, 2015
Would help if this chat was called bcc CURES rather than “cure.” Need 2reinforce diff causes and cures needed 4#breastcancers #SXSW #BCCure
— LBBC (@LivingBeyondBC) March 15, 2015
Patient says she had to forcefully say that she didn’t want to be on a treatment that wasn’t working & side effects were bad #SXSW #bccure
— Laney (@lanes0220) March 15, 2015
Social media can empower patients: one patient in the room reached out to @ButDocIHatePink for advice #BCCure
— Healthline.com (@Healthline) March 15, 2015
.@ASCO launching a data tool for oncs to see how others across the country are using treatments #bccure #sxsw #MakSXSW #bcsm
— Laney (@lanes0220) March 15, 2015
#clinicaltrials need to be discussed up front as a treatment option, not something out of the ordinary or a “last resort” #SXSW #BCCure
— LBBC (@LivingBeyondBC) March 15, 2015
?Read the entirety of the? panel live tweeting?here.
What did you learn? What did you already know? What do you have to share? Let me know via Twitter @MeganEliseOrtiz.
To the ladies and gentlemen of Room 201-202, thank you for having me. I enjoyed meeting a few faces from regular #BCSM Twitter chat community and look forward to continuing this much needed conversation.